[ad_1]
For baby Lana Jovanović, who suffers from spinal muscular atrophy and needs a drug worth 2.4 million dollars, 1.7 million dollars were raised. Another $ 700,000 is needed for her recovery. The girl has been feeling bad for the last few days and now there is a new problem.
– Lana greets you with the sweetest smile. Her lungs are much better and we hope she continues that way. For the past two days, our Lana has been struggling with the temperature, but we expect it to be mild and temporary. We are certainly happy to see this smile. Unfortunately, the 23 days he spent in the hospital feeding on the tube brought him another problem. On Monday, Lana will have a Peg implanted (percutaneous endoscopic gastrostomy), where an incision will be made in her stomach to practically bypass her esophagus, it is written on the Instagram page, through which the help is collected for Lana.
– That way, Lana will feed directly from her stomach because she has lost the act of swallowing and, for now, this is the only way of eating that is acceptable to her. This does not have to be a permanent solution because we are dependent on the drug we are raising money for. We hope it will help you to strengthen all muscle groups, and thus regain all functions related to swallowing.
– Then let’s not stop. Therapy is more necessary than ever. Faith in her awakens our hope, instills confidence. We believe in you, you believe in our Lana. Let’s all go for Lana, get involved friends, she needs us. We will do it together.
Lana Jovanović is a ten-month-old girl who was diagnosed with type 1 spinal muscular atrophy. There is a cure for this disease and Lana’s future, but it costs more than 2 million dollars. The same amount has already been collected for Sofija Markuljević, who suffers from the same illness.
Lana is among 34 patients in Serbia who receive the drug spinraza., a therapy available at state expense since 2018. Spinraza slows down the disease and helps significantly, but Lana’s parents are looking with great hope at the new gene therapy, recently registered in Europe. It costs $ 2.1 million. It is about the medicine “Zolgensma”.
A smiling baby at birth has a rating of ten. Until the second month, nothing indicated that he was different from his peers. Her parents noticed that she did not move her legs, that she had little mobility, and when they put her on her stomach, she could not lift her head off the ground. Those were the first signs.
Visits to the doctor, examinations and finally a diagnosis began. The therapy she received two weeks later and the mandatory exercises five times a day are responsible for Lana being able to still swallow and breathe on her own.
Last year we can help in the following ways:
Sending an SMS message: Enter 808 and send an SMS to 3030
Sending an SMS from Switzerland: Enter human808 and send an SMS to 455
By payment to the account in dinars: 160-6000000069907-42
Payment on account in foreign currency: 160600000006991130
IBAN: RS35160600000006991130
SWIFT / BIC: DBDBRSBG
Paying with payment cards through the link: E-donate
Paying from your PayPal account through the link: PayPal
And through Lana’s help site.
[ad_2]
