[ad_1]
Photo: Tanjug Printscreen, Private Archive
President Aleksandar Vučić said today after the display of tanks and armored vehicles at the “Mija Stanimirović” barracks in Niš that the state is doing everything possible to help treat little Anika Manić (2), who suffers from muscle atrophy. spinal.
Vučić stressed that he hopes that little Anika will be transferred for treatment in Budapest before December 15.
– (Foreign Minister Nikola) Selaković spoke last night with (the head of Hungarian diplomacy) Peter (Sijart) … Hungary will also help, we will also help to move little Anika to Hungary with some of the state planes – he said Vučić.
The president also said that in all Western countries, seriously ill patients are treated with the help of telephone messages, because according to him, treatment with unregistered drugs costs a lot, especially in the West.
– I am proud of the fact that we have undertaken a lot in recent years, especially for children suffering from spinal muscular atrophy. Since June 2018, when I welcomed mothers of sick children, we have introduced the drug spinraza. They are expensive therapies. In the first year, the patient costs the state 540,000 euros, and in each year for the rest of his life, 270,000 euros. Today we treat 37 children in this way with state money and those drugs. Those who criticized did not give any medicine – said the president.
He added that he is proud that the state has done so much for children with SMA.
– We try to take care of all the children and help them as much as possible. You saw that Denmark cannot easily help because the drug is not registered, said the president.
Anika frantically fights for her life
Anika suffers from spinal muscular atrophy and has been frantically fighting for her life in recent weeks. The time is coming when you have to receive therapy that costs an incredible $ 2.4 million.
He was born a healthy and strong baby with strong reflexes and a grade of ten.
However, after the fifth week of life, the parents noted on the medical examination that he did not react as strongly as before. After just two weeks, the adorable little girl received a diagnosis her parents had never heard of before: spinal muscular atrophy, or SMA type 1 for short.
Behind that name is a progressive and terminal neuromuscular disease with which 1 in 10,000 babies is born. Patients’ bodies lack the gene that makes proteins when used for food by motor neurons. The neurons that transmit impulses to the muscles then die because they have nothing to eat. And the muscles, since they receive no signal to move, rest and atrophy.
It starts with large muscle groups like the arms, legs, and neck, but after a while the muscles for swallowing, coughing, and breathing also atrophy.
(Kurir.rs)
delivery courier
Author: delivery courier
[ad_2]
