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Serbian President’s Wife Opens Regional Online Conference “Rare Diseases Database 2020”
I believe in cooperation and the unification of the efforts of our entire region, we have a common enemy and the same goal, said Tamara Vučić, wife of Serbian President Aleksandar Vučić, in her speech at the opening of the first regional meeting “Base of Diseases Rare 2020 “. This conference was held online, due to the current pandemic.
Photo: Printscreen / YoutubeThe First Lady of Serbia noted that she and the Republic of Serbia will continue to be engaged in this very important issue: the fight against rare diseases. As he noted: “The goal is for patients, including children and adults, to exercise their right to treatment and a life worthy of a human being.”
– I hope that with each new meeting, at least one more country from the region will join us, and that we will join the European reference network (rare diseases), said Vučić.
Tamara Vučić also told an instructive story about two friends and saving turtles, to illustrate the importance of fighting for every life, stating that such efforts give meaning not only to the lives of those we save, but also to “the lives of all of us. “. The conference organizers noted that the First Lady of Serbia “contributes to improving the situation of people suffering from rare diseases on a daily basis by advocating and participating in their humanitarian work.”
Objectives of the portal
The conference highlighted that the goal of the Internet portal “Rare Disease Base” is to shorten diagnosis time and network doctors and patients in the Balkans.
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