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Oliver is a one-year-old boy from Bajmok, near Subotica, who suffers from a rare and serious disease: spinal muscular atrophy. Some 2.3 million euros need to be allocated for effective individual therapy for this disease.
It is a very progressive disease that attacks the muscles and basic life functions such as walking, digestion, swallowing and breathing are rapidly lost.
Oliver is currently at his home in Bajmok, and an exam is scheduled for January 25 at the Budapest hospital, where doctors will prepare him for the expensive gene therapy with the drug “Zolgensma”, which should stop the disease.
“According to our budget, we collected the amount of ‘zolgensma’, but we will only receive an official notification from the bank on Monday,” states “For Oliver’s Life” on Instagram.
“It is important to know that the excess money raised that is needed for the ‘zolgensma’ can only be used for ancillary devices and therapies that Oliver needs after gene therapy,” the announcement states.
Oliver should receive the precious medicine until his second birthday, but every day before is important for his recovery and physical development. That’s why they are all over the country organized humanitarian bazaars.
