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After Robin Williams passed away in August 2014 at the age of 63, many remained convinced that he had succumbed to old vices or had taken his own life due to depression. For the first time, his widow spoke openly about what made him sick and caused him to die.
The world came together after his death in assessing that he was one of the brightest minds. The comedians agreed that no one on stage fired the original jokes any faster. Those who made movies with him say that he never repeated the same scene twice: during each shoot he would add something new that would further enrich the scene and make it fun.
Williams was aware of that. In 2018, Marina Zenović made a documentary about him titled “Come into my mind.” When asked if there were any fears, Williams replied, “Yes, I’m afraid my sword will become dull. That I will no longer be able to shine.” It was these fears that came true because the autopsy determined that Williams actually suffered from Lewy physical dementia, a type of dementia that changes the way she thinks, moves, behaves, and her overall mood. Lewy body dementia (LBD) is actually a spectrum of diseases that includes Parkinson’s disease. The cause of LBD is still unknown. Susan Schneider Williams, the widow of Robin Williams, testified about that in an interview for The Guardian.
– Doctors spoke to me after the autopsy and asked if I was surprised to learn that Robin had these “Lewy” bodies all over his brain and spinal cord. I didn’t even know those bodies were present. However, that gave me an explanation for his behavior. Apparently some foreign body had infiltrated his brain. That made sense, she says.
Susan Schneider Williams is now on a mission to correct all the misconceptions about Robin Williams’ departure and raise awareness of this rare brain disease. One of the forms of his struggle is the movie “Robin’s wish”, a story about the last days of the famous actor.
The two met in 2007, at the store.
– I saw him at the store and I thought “Look, Robin Williams.” As he walked out, he smiled at me and something made me get closer to him. He was wearing clothes with a camouflage pattern, so I asked him how he was doing with the camouflage. “Not very well, you see that you found me,” he replied – says Susan, and four years later they were married. Only two years later, the first symptoms of Robin’s disease appeared.
These were initially abdominal pain. Then her hands began to shake and then she began to suffer from insomnia. Susan says her anxiety was becoming more and more noticeable.
– He became paranoid, he had never been like this before. It is a history with LBD, the symptoms do not appear all at once and they change. This confuses both the patient and the caregiver. You don’t know what is a symptom and what is not – says Susan.
Robin suffered so much that he and Susan decided to go to a neurologist for a test. Just a week before the scheduled exam, Robin committed suicide.
– I think I wanted to avoid that exam. He must have thought they would lock him up there and never come out – says Susan, adding that after his death, all the media reported that he died of depression, alcoholism or a combination of the two.
– It showed that we just can’t talk about disease. Depression was a symptom of LBD and therefore did not have a psychological cause, but a neurological cause. His brain was breaking down – says Susan, adding that it is true that Robin had problems with addiction, but that this was not a problem in the period before his death.
– Robin was clean when it came to alcohol six years before his death. He went to a rehab center for a short time in 2014 to meditate and recover. I was enraged when I saw the headlines that he drank again because I know there are many treated alcoholics for whom he was the inspiration to go out, says Susan, adding that after the autopsy, the doctors were shocked when they realized how much the drug failed. Robin’s brain due to illness. .
– They told me it was the worst case they had ever seen. I am convinced that this illness led him to suicide. So I’m talking about how science would turn towards finding a cure and a proper diagnosis in general. Robin never received that diagnosis while he was alive. If he had, he could have had a few more years to live and have made someone else happy and uplifting. As for me, he always shows up when I need him. An hour before this interview, I saw him in our yard – says Susan.
ADDITIONAL VIDEO:
Kurir.rs/IB
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