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Oliver Pal Gajodi, who suffers from spinal muscular atrophy, turned one year old today and was missing his first tooth, his family announced on social media. Unfortunately, the “star-eyed boy” had his first birthday in the hospital.
Oliver’s mother shared a heartwarming post on Oliver’s Life page today, summarizing the feelings, love, pain, and hope for her son’s first birthday.
“The new dress was bought and it is drying, I suppose I will be able to iron it. It is important that your suit is ready. Tonight I have to make a cake in the form of honey, where is the blue color of the whipped cream? It is here. It’s good. Balloons? Balloons !! I forgot to buy balloons, Jozef will have to inflate them after work and tonight.
The big inscription Happy Birthday Olivera is scattered throughout the room, the playlist has been compiled, we can’t have a big party with the band for the crown, but hey, it will be very nice like that. The gift is wrapped and waiting for you in the morning when you wake up. Let’s get some sleep for the most beautiful day tomorrow …
Timea, Timea, wake up, it’s time! Wake me up, nurse, across the room where I’m not stretched out the sign, I’m not even in a formal dress, and I’m not even baking a cake. The balloon is nowhere to be seen. I enter Oliver, who is not in his room with blue walls, but in the hospital room, he is not wearing his suit, but an ordinary mole so that he is as comfortable as possible because of his respirator and freckles.
What I hear is not a playlist of our favorite songs, but the beeping of the cameras that indicate that Oliver is breathing, that his heart is beating, that he is alive. I dreamed of everything, if I fell asleep from worry, like all these months when we found out that I was sick. I’d rather be fantasizing. I dreamed of the most common things, because that’s how this life was for us. Who would have thought that the birth with him lasted longer than we will spend his first birthday together. Three times in half an hour… That’s it. But it does not matter! If this is the price for everyone to spend in my arms, leave them !!!
We will push, my little gentleman will win because you are all invited on your first birthday! If you! We’re in the hospital, but you play a song, rejoice for us for those 3 minutes, and dial 848 to 3030 and bring it to life for its birthday! “, Said.
Oliver was born on December 17, 2019 in Subotica, as a healthy baby, but after the first checkup he was diagnosed with a vicious and fatal disease: type 1 spinal muscular atrophy. It is a very progressive disease that attacks the muscles and quickly loses his life. basic. functions such as walking, digesting, swallowing and breathing.
Most babies with this disease do not experience their first birthday. Second birthday, almost none.
Oliver’s family sees hope in the drug Zolgensma, which is sadly the most expensive in the world and not available in Serbia: 2.4 million euros are needed for treatments abroad, for gene therapy, medicines and medical consumables , medical devices and their service and orthopedic aids, physiotherapy, rehabilitation, as well as travel and accommodation expenses.
So the best birthday present for this little one is to help him on the path to a disease-free life.
We can help Oliver by sending him an SMS message: enter 848 and send an SMS to 3030 OR by payment to the account in dinars: 160-6000000732419-36, or to the account in foreign currency: 160600000073285198
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Author: Kurir.rs
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