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Children and people with autism , Down syndrome, dementia, cerebral palsy, and other neurological disabilities have increased their risk during this time of the coronavirus outbreak.Such children and individuals do not understand the coronavirus, it is important to stay indoors, within the four walls of the home. Many are hurting their own bodies or biting or pinching their parents, breaking things.
Parents of children and people with autism, Down syndrome, dementia, cerebral palsy, and other neurological disabilities have also suffered. The work has also increased several times. In addition to the struggle to keep the coronavirus infected, parents struggle to keep these children at home.
With the spread of the coronavirus worldwide, there is no longer any difference between the mother of an autistic child in the developed city of New York or the mother of an autistic child in Bangladesh. The boy had to struggle to handle almost the same thing. Low-income parents have to fight more with their children than ever.
However, these parents say that even if the suffering increases, it is possible to give the child with special needs more time just by staying home to prevent the spread of the coronavirus. As a result, in addition to deepening the relationship with the child, it is possible to teach him to do household chores by hand, which will be useful for children in the future. In addition, various organizations are conducting online activities for children and people with special needs.
Talk to Maniza Rahman on Facebook Messenger. He said: ‘I have to do school work from home. The older son is taking school classes online. The young child has no idea of the corona virus that created the 10-year-old (autistic) special needs child. His school is open all year, including summer. He is in a routine all the time. But now not only is her school closed, but the therapists and nurses who were at home to take care of her have also stopped coming. Srijan is very upset that he cannot leave the house. ‘
Rahman Handle said: ‘She wants to go out after wearing shoes over and over again. If not, he gets angry. Her school teachers take her classes on Google, and school teachers and therapists occasionally call FaceTime to speak to her. But the child does not like these things. Why is school on iPad? It cannot be accepted in any way. In fact, any change infuriates him.
The United Nations declared April 2 as World Autism Awareness Day. April is celebrated as Autism Awareness Month. However, this time there is no official activity in any country in the world regarding the spread of the coronavirus.
Nasreen Ahmed, another mother from Old Dhaka, Bangladesh, is struggling with her autistic twin sons, Ananta and Durant. This mother’s level of struggle with her two 20-year-old daughters increased during the Crown period.
On the phone, Nasreen Ahmed couldn’t speak for a while to cry. Nasreen Ahmed’s husband died five years ago. Nasreen Ahmed spends her days with her two daughters with the help of various people, including her husband’s savings certificate, some money kept in the bank, help from a brother, zakat money. Many have been unable to help spread the coronavirus. On the other hand, it is becoming difficult to keep two daughters at home all the time. The two girls are restless most of the time.
Shafatun Nesa is another Gopibagh mother in the capital. Sumaiya, the 32-year-old daughter, cannot walk alone due to cerebral palsy. Walker walks. The girl graduated from the Pharmacy Department at Stamford University and is currently working for an essential pharmaceutical company. Shafatun Nesa or her husband are responsible for taking the daughter to the office. The story of Shafatun Nesar’s fight cannot end here. Her 22-year-old son Ahmed Fahim is autistic. This boy will leave the house whenever he wants. At this time of spread of the coronavirus, the child can be infected from anywhere, from the vendor to the vegetable vendor, to the tea shop hangout. But there is no way to explain to the child about this virus.
Shafatun Nesa said: ‘We have become unbearable with the child. If he can’t pay his deposit, he bites and takes the meat out of his body.
They attached importance to online activities.
President Sajida Rahman (Danny) is the founder of the PFDA-Vocational Training Center. Since 2014, the non-governmental organization has been working to make children with autism and neurological disabilities (children of any age from 11 years old) self-sufficient. Another identity of Sajida Rahman is that she is the mother of the 27-year-old autistic Siamul Karim. He raised the boy alone. After completing this level, the boy worked at the duty-free tourism shop at Shahjalal International Airport. However, she has now stopped working and is taking various computer courses, including online training at home.
Sajida Rahman said that the PFDA-Vocational Training Center has launched online activities since the spread of the coronavirus. Teachers are holding regular classes for students and learners from their own group via “online” from home. Online classes are held every day from 9 a.m. at 5 p.m. All activities, including the continuous evaluation of student work, the “Individual Objective Plan (ITP)”, the evaluation of the work efficiency of caregivers, the liaison with parents, the reference relationship with specialist doctors are Ongoing As a result, parents, teachers, and students do not retire. Emphasis is being placed on teaching homework to students in the curriculum. And parents also have the opportunity to stay home on holidays, many parents are realizing how much time and effort a single mother has to put up a child to teach her how to do things like masking potatoes, cleaning the house. One cannot go out to prevent the spread of the coronavirus, or one may have to say the same thing a thousand times about the virus.
Sajida Rahman said it is not possible that many low-income parents send their children to online classes, and that those parents are being contacted by phone.
The Tori Foundation and its affiliates, School for Gifted Children, run schools in Dhaka and Rajshahi for students with autistic and neurological disabilities (ages 3 and up). Marufa Hossain is the director of these two organizations. The total number of students in the two organizations is approximately 400. Marufa Hossain’s daughter, Afia Kabir, suffered from cerebral palsy and was confined to a wheelchair. Afia is doing law honors at North South University.
Both Marufa Hossain organizations are emphasizing the theme of online activities during the Corona period. Marufa Hossain said the spread of the coronavirus posed another challenge for parents. It is up to the parents to explain the coronavirus according to the child’s level of intelligence. Marufa Hossain also urged to monitor the subject of various physical exercises of such children. And she, like other mothers, mentioned giving the child more time as a result of this crown expansion time. In his words, even if the parents have to work ‘double’ or several times more, they have to give the child more time taking advantage of this opportunity.
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