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Zarjan Naseer is planning the funeral of his 13-year-old son.
On Monday, Rohail died in the covid-19 suites.
– He had weak lungs that he couldn’t cope with. It is indescribable to watch your son die, he says.
For several years, Zarjan Naseer has known that she would be forced to bury her son. What she did not know was that covid-19 would take her life.
– I had hopes that he would live between 20 and 25 years. I thought he would stay with me until then. It’s a shock that it didn’t happen, he says.
When Rohail was five years old, he hadn’t started talking. Zarjan feared something was wrong, but was told he was exaggerating. Before he was eight years old, his body had gradually started to decline.
Photo: PRIVATE
Rohail, 13, died in the covid-19 suites.
When Rohail was ten years old, they moved from Pakistan to Oman. They came to Sweden two and a half years ago. Only then did Zarjan confirm his suspicions. Rohail was diagnosed with Sanfilippo syndrome, a rare and incurable brain injury.
– I would gradually break his body year after year. In the end, he was unable to walk, stand or sit by himself, says Zarjan.
Photo: Magnus Wennman
Zarjan Naseer is in mourning for her son.
“He had been horrified that it would become covid”
A month ago they moved to Uppsala. Just over two weeks later, Rohail fell ill.
– I had difficulty breathing, and I had it before. But he knew this was something else. When he had a fever, I got scared and called an ambulance.
Zarjan is single and has cared for his son day and night. At the hospital, he was notified that they had been granted assistance.
– So I still hoped he would survive. At the same time, she didn’t know if she would ever come home, she says.
Rohail’s lungs were too weak to support the respirator. After three days, doctors said he was unlikely to survive.
– I was in shock. I had feared that it would become covid and thought that if I had it I would die, she says.
Photo: Magnus Wennman
Now the mother is planning her son’s funeral.
“I felt as helpless as my mother”
But Rohail surprised the doctors. He responded to oxygen and treatment. Doctors announced that there might still be a possibility.
– It was a miracle and I had high hopes of going home. Although he knew deep down that the chance was low, he hoped. That’s what a mother does, hopefully in the end, says Zarjan.
But Rohail’s condition worsened. After two weeks in the hospital, his body was no longer strong.
– At first I thought I couldn’t do it. That I couldn’t be there. But then I said to myself, he is my son. I cannot leave it to nurses and doctors. I have to be there by his side.
At three in the afternoon, the medical staff cut off the oxygen. Then he had 15 minutes to live.
– I can’t forget that moment. I felt as helpless as a mother, as a human being. When I touched him, when I saw that he turned pale. Not know what to do. It is very difficult when you watch your son die. Your only child to whom you have dedicated your whole life, he says.
Photo: Magnus Wennman
At three in the afternoon, the medical staff cut off the oxygen.
“I don’t want parents to panic”
Two days later, the news spread through Sweden. A child under the age of 19 had died of covid-19. The first in Uppsala, the third in Sweden.
– My son’s death was caused by covid. But he died as a result of his illness and the fact that his lungs were already weak. Covid is a very dangerous disease and people must be very careful. But I don’t want parents to panic over the death of my son. Rohail was a special boy, he says.
Rohail was Zarjan’s only son. Getting more was not an option.
– I never thought about the thought. When I realized that I was special and needed attention, I made that decision. I have sacrificed my dreams and my visions to give all my time to him, he says.
Now a new battle awaits in Zarjan’s life. Dealing with pain and loneliness.
– Rohail couldn’t move, couldn’t speak, couldn’t hear my voice. He could never call me mom. But I still felt that he was with me. I never felt lonely, but now I do. There are days when my friends are here with me, but they go home and now I am left alone.
Rohail’s room in his home in the apartment has not been touched. The adapted bed, shower chair and other aids are left alone.
– It should stay. I won’t wash his clothes, because I want to smell him. I want him to feel like he’s staying here with me, she says.
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