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“We have never raised a daughter as a disabled person. She may not become a teacher, but she will have her own business, pay taxes and thus repel all the angry commentators who say that children with the genetic disorder of Down syndrome will be supported. for the state, “says Valeria. husband Sergey raising a young Anastasia.
Avoid breakage
The unexpected news that the first common offspring were born with a genetic disorder Down syndrome reached the family just over three years ago. When recounting the prehistory of the recent event and current daily life, the girl’s mother did not paint everything with beautiful colors and admitted that the internal feeling of depression is due to her daughter being different, still torturing her. However, both then and now, the existing activities and plans together with Anastasia, who is called Nastyte at home, do not allow him to grow the business of his name, which he would lead in the future.
“The girl is planned and expected. As we live with my family while migrating between Lithuania and Russia, when I was waiting, I went to see doctors in both countries. In Russia, I still have to visit a state medical institution, but I also consulted in one of the best private clinics. But our daughter had a cookie, the fact that she has a genetic disorder Down syndrome, we only knew about it at birth, “said Valeria, adding that the fetus was not subjected to genetic testing in her uterus because neither the mother nor her husband age does not enter the risk group.
Recalling the last months of pregnancy, the woman did not hide, they were ashamed, they had high blood pressure, so they had to be monitored by doctors in the Vilnius Santara clinics for a while. Until one morning, after an ultrasound, the doctors said they would have to go to the operating room and that there Valeria would have a cesarean section.
Anastasia saw the world prematurely, in about 32-35 weeks. The newborn was smaller in stature and thinner in body than babies born after nine months. In addition, the girl was born with a heart defect that is common in children with a genetic disorder Down syndrome.
Personal file photo
Impressive message
Valerija did not immediately learn that her daughter was different. First of all, the news that the baby has a genetic disorder of Down syndrome, the doctors informed his mother and together with her eldest daughter, 10 years old, María. And while it was hoped to protect the woman from the emotional blow and tell the news with the help of psychologists, everything happened a little differently than planned.
“After a while I did not see the doctors come to the room, I went to resuscitation to see Anastasia in person. I saw her connected to life support machines and I started crying. Then she told me that her daughter was born with Down syndrome and that will survive, “said the interlocutor.
After hearing the shocking message, the woman said that she had started to surf the Internet in search of information about the genetic disorder Down syndrome and its characteristic and non-characteristic features.
According to her, the little daughter did not look very different from children with a physically healthy development: she did not have a flat neck, lower ears or a diagonal line on the palm, which is characteristic of this genetic disorder. Although Valeria hoped it could be a mistake, geneticists soon confirmed that Anastasia had Down syndrome.
Development is not far behind
During the first three days, the girl who fought for life in the resuscitation of the Obstetrics Department of Clinicas Santara survived and soon gained weight, almost reaching the indicators of her physically healthy peers. The interlocutor said that despite the fact that when she was single, her daughter required surgery for a heart defect, she had no further health problems. The physical development of the baby does not lag behind that of physically healthy children.
“She sat on time, got up, began to walk, like a physically healthy girl. The teeth also erupted without delay. The daughter eats alone, she can chew on her own. She speaks two languages: Lithuanian and Russian. True, she can say a little less than words, but “We understand what you mean. We have never needed special rehabilitation for children with a genetic disorder of Down syndrome. But that does not mean that we will not face challenges in the future, “said Anastasia’s mother.
Our Nastytė may not become a teacher, but she will have her own business, a position in society, and will pay taxes to the state.
Condemned himself
“When my daughter was born, the doctors told me that it was a gift from God, because only special mothers have such children. Then I got very angry because I did not agree with that statement. I condemned myself for thinking I would have done nothing to be a bad wife, Mom. “In no way do I think that raising a child with Down syndrome is a punishment, but it is a challenge, against me, my family members and society,” the woman did not hide.
According to her, the most worrying thing is the fear that, as Anastasia grows, she will have to endure the bullying, which children without disabilities often face in schools or other social spaces.
“I wonder when I hear you say: ‘You have to be happy.’ Yes, we are happy, but the joy is different. I have always thought that children with Down syndrome are born only in antisocial families. Not mothers who take care of themselves while they are pregnant – Eat healthy, take vitamins, visit the doctor, don’t drink alcohol or smoke ”, – opened Valerija.
Anastasia matches perfectly with her older sister Mary. (Personal file photo)
Helped activities
Certainly there were tears, not hidden by the interlocutor, and depressing emotions often flooded unexpectedly to this day. However, there was simply no crying or other pain for a long time: with her husband Sergejs, even before the rise of the family and the appearance of Anastasia, they were and still are extremely enterprising. The responsibility of existing customers and own companies engaged in export and import, established not only in Lithuania, but also in Latvia and Russia, was not broken.
“I couldn’t tell people, ‘Hi, I gave birth to a boy with Down syndrome and that’s why I won’t be able to work.’ “Our daughter is different, we make no secret of it. And half a year ago, we created her own brand ‘Nastia Garden’. We export a variety of the girl’s favorite products from organic vegetables and fruits grown by Lithuanian farmers,” said the woman .
Personal file photo
“I often joke that this brand will grow together with Nastyte, and when it grows, it will have its own company and therefore will repel all the angry commentators who say that the state will keep children with genetic disorder Down syndrome; It is not and will not be, “Valeria smiled as she shared her vision for the future.
Sergei and his wife created the Nastia Garden brand, owned by Anastasia, half a year ago. (Personal file photo)
There is no lack of stubbornness
The interlocutor asked to be sure that little Anastasia would one day take over the management of the brand that bears her name. The girl no longer lacks stubbornness and activity: at home she takes care of the entire collection of dolls, she makes them eat. And in the morning, together with her older sister, Mary has a ritual: she does not sit at the table for breakfast without brushing her lips.
According to Valeria, the daughter is not raised as a girl with a genetic disorder, but like any other child with a completely healthy physical development.
“A business associate has said that children choose their parents seven years before they are born. I told Nastyte: if he wanted to grow up, he constantly reminded himself that he has Down syndrome, and because of his indulgence he chose the wrong mother: never We raised a daughter. Maybe that’s why he does everything that children with a healthy physical development nowadays. Maybe some will say that my husband and I are naive because people with this genetic disorder have mental retardation, but that is not true, there are all kinds of them. “Some of them even graduated from college. Our Nastytė may not become a teacher, but she will have her own business, a position in society, and will pay taxes to the state, “smiled the interlocutor.
Personal file photo
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