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H. Varnienė writes that she is a working mother, but the legal system deprives her of social guarantees, because it is not possible to obtain a certificate of incapacity for work if her daughter Aušra becomes ill.
“Until Aušra turned 18, I got sick and, after turning 18, no more. Last year, for example, Dawn had pneumonia twice and was hospitalized. One of them is not leaving due to disability, and the inability to work does not belong to the caring mother. However, the hospital does not provide nursing care either. Sometimes Dawn lay on resuscitation, even then I came and fed her. If Dawn was my husband, she might be breastfeeding and getting sick from the same disease once in a lifetime, ”he said.
As the woman says, those who have not tried the hospital bread certainly do not run to the hospital, but are happy.
“There for bed or Tapchana I need to fight. Do you feed What are you kidding
Mothers raising children with severe disabilities, H. Varnienė said, also have no vacation. According to her, if the labor code provides a certain number of days for people who work, why not for nurses?
“I remember that the state has employed me and other mothers of the same type, this is called ‘permanent care’ and ‘care’. And this combination of three words is called slavery. Why? Because there is no choice. Jokio A Through coercion, I became my daughter’s guardian just because she would receive her disability money, which otherwise, if I didn’t become a guardian, the state just wouldn’t pay. I became the daughter’s nurse because Aušra cannot even buy a volunteer for her nursing money, ”she explained.
The woman also added that the volunteer according to the law on volunteer work must also keep records of working time, spreadsheets, cover the costs of volunteering: for the roof, food, work clothes. The benefit, he assured, is less than half the minimum wage.
“It is very convenient to throw all the terrible burden on the mothers. And do not lie to yourself or yourself, Minister Kukuraiti (I know you will read): there is no” temporary respite “. The” temporary respite “could become a service if it is enshrined in the law, regardless of the minimum rest for mothers who care for their children for 24 hours per day. “
According to H. Varnienė, no social system will help working mothers who care for children with total disabilities and, in this case, the care and supervision of the child during and after work falls solely on the shoulders of the mothers. To illustrate this saying, he shared a photo from a business trip to Klaipeda, where he had to go with his daughter.
“We both went to the meetings because the business trip is two days, and neither the temporary service nor the one night service are available. How long do you think the rhythm of the mother, the caregiver, the nurse is?”, She asked. rhetorically.
He also spared the president’s bitter words: he promised to create a prosperous Lithuania during his election campaign.
“I read President G. Nausėda’s annual speech. After promising prosperity to all of Lithuania, he saved several soldiers and became even more beautiful, apparently, and even higher … So if we take care of our beauty in this way, Who will “do” the policy respected by the President?
Delfi commented to the Ministry of Social Security and Labor (SADM). Here are his comments on H. Varnienė’s comments:
Why is at least one parent of a disabled adult not disabled for work? Why is it not proposed to change this system?
The Sickness and Maternity Social Security Act provides for the possibility of receiving sickness benefit for the care of a sick family member. It should be noted that there is the possibility of receiving sickness benefits not only for the care of children, but also for the care of other family members. Family members are considered a spouse, child (adopted), mother (mother-in-law), father (adoptive father). The sickness benefit for the care of a sick family member (adult) due to the same illness is paid for a maximum of 7 calendar days, regardless of where the person is treated: in a hospital or at home. Therefore, said law allows a parent to receive sickness benefits if, according to the doctor’s instructions, it is necessary to care for a child who has already reached the age of 18.
What assistance can adults with disabilities currently receive from the state?
The following special assistance measures can be provided to adults with disabilities:
Financial: When a person determines the level of work capacity, an invalidity pension is paid, when special needs are identified, specific compensation for nursing or care (assistance) is paid.
Program for the adaptation of houses for the disabled (redevelopment of houses and living environments using special elements, substitution of spaces not adapted for the disabled and simple repairs during construction works directly related to the adaptation of houses).
Provision of technical assistance. Individuals will receive technical assistance equipment free of charge, with a contribution, or may purchase technical assistance equipment themselves and be reimbursed for the costs of purchasing such equipment.
Personal assistant service. The organization and provision of personal assistance services project is currently underway, during which people over the age of 16 with a certain level of disability or work capacity have access to personal assistance services, which can be provided for up to four hours a day, 7 days a week. The municipality determines the specific nature and number of hours of personal assistance services.
Social rehabilitation services for disabled people in the community are provided in the municipalities by the winning non-governmental organizations of disabled people. Social rehabilitation services aim to help restore or maintain the social and independent living skills of the disabled, increase their employment and opportunities to live independently in the community.
Provision of social services. Children with disabilities and their families can receive general social services (information, counseling, mediation, representation, etc.), social care services (such as home help, social skills development, support or rehabilitation, intensive assistance in the management of crisis, intensive crisis management services). assistance, etc.) and social care services (day or short-term social care). If necessary, families can request a temporary respite service. The need for social services is assessed by municipal social workers.
Other assistance depending on the nature of the disability: complex services for the blind, sign language interpreter services, financial assistance for disabled students, partial home loan, home rental, subsidized employment, etc.
Temporary breathing service:
The municipality of residence must contact the “temporary relief” service. The service is organized in a flexible way, taking into account the needs of the person with disabilities and their families. Each person has 720 hours of “respite” services. per year (i.e. 30 calendar days). The temporary relief service can be organized through home help, childcare or short-term social care.
Volunteering:
Regulation of volunteering is relatively free, and a contract with a volunteer is mandatory in only two cases.
The volunteer organizer concludes a written volunteer contract with the volunteer when:
1) reimbursement of expenses related to volunteering;
2) one of the parties wishes to conclude the contract.
A more detailed accounting of volunteering should only be required if, for example, the volunteer organizer is implementing an EU-funded project or the state budget and the relevant instrument establishes such an obligation. In other cases, volunteering is not necessary.
It is strictly prohibited to use the information published by DELFI on other websites, in the media or elsewhere, or to distribute our material in any way without consent, and if consent has been obtained, DELFI must be cited as the source.
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