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Alina Cikanavičiūtė from Vilnius, who has been ill in Baltmi since she was 9 years old, admits that she is not yet fully friends with this illness. And although she hardly pays attention to the strange stares of those around her, the girl does not hide after having previously had bullying and painful comments.
With the news portal tv3.lt, the girl agreed to share her experience and told what it means to have white disease and how those around her react to people with the disease.
Skin protein (vitiligo or melanocytopenia) is an acquired or congenital skin disease. With this disease, white patches form on the face, limbs, or any other part of the body. When the skin stops producing melanin (the substance responsible for the pigment, the color), the skin color disappears and white spots begin to appear, which expand and increase until the whole body finally turns completely white.
Decided not to buy more medicated creams
The girl says that she felt the first symptoms of the disease when she was nine years old: spots appeared on her elbows, knees and eyes. A. Cikanavičiūtė recalls that the spots on her skin expanded very slowly, but in the 20-22 years of her life, more and more signs of the disease appeared on the girl’s body.
At first, the girl applied various medications for her skin and visited the doctor regularly, hoping to find a way to overcome the disease. However, according to her, after the words of a doctor, she lowered her arms.
“At that time I was only working in the Santara clinics, so it was very convenient to check. Until the doctor asked me: “Honey, what are you walking here, still nothing is going to change?” Then I stopped buying creams and other white remedies, ”says A. Cikanavičiūtė.
The girl adds that currently the only tool she uses to protect her skin from the spread of blemishes is a sunscreen with an SPF 50+ filter.
Experienced bullying
And although this disease is not dangerous to life and health and, according to A. Cikanavičiūtė, does not cause physical sensations, such as pain, patients with white often feel great discomfort and are ashamed of their appearance.
A. Cikanavičiūtė had the same thing for a long time. According to the girl, it had been a long time before she accepted the changes in her skin. However, she admits that she is still not completely friends with her illness today.
“I always consoled myself by thinking that ‘at least it doesn’t hurt.’ Of course, it doesn’t hurt until the sun catches me off guard.
I can’t say that even today, 100 percent. I’m friends with White, but now our relationship is really good. Now I live thinking that this is my uniqueness, and sunscreen is the main companion ”, the girl smiles.
The interlocutor reveals that the most difficult thing was resisting the harassment of his companions and the stares of other people when he was sick in white. The girl does not hide that due to the spots on her body she has repeatedly received painful words around her:
“It was more difficult in my teens and until I got married because I was often bullied. One of my eyes had a stain, he asked me if someone had put it on me or if I couldn’t paint. “
I didn’t get a job
The girl says that while suffering from white, more than once she faced a situation in which due to her illness, passers-by avoided communicating with her. According to A. Cikanavičiūtė, once due to his appearance, he was not even offered a job.
“I have some stories that make me wonder, ‘What if I didn’t get sick?’
We discussed with friends what was wrong, why we were alone. I personally thought my fat was to blame, and my friends concluded that boys were scared of my variety.
Another case where I came back from a job interview that I didn’t get. I interacted with the client and she hinted, apparently through your skin. I never would have thought about it, and it goes, doubt is sown ”, the interlocutor openly says.
“They interviewed me on the street, at the sports club”
And although the interlocutor today says that she is used to the look around her, in the past the focus on the “different” skin disturbed her as needed. The girl says that she often has various questions about whether she will get infected from being around other people.
“Sometimes I joke about that myself. But a couple of years ago, I already felt like a “star” because I was interviewed on the street, in a sports club. It’s funny when a woman at a bus stop tries to heal herself until a bus arrives.
Or, in the shared shower, while I am naked, the woman who takes a shower asks me why she is afraid of catching it ”, smiles A. Cikanavičiūtė, adding that her family and friends are already used to her appearance and she is not. I don’t even notice his spots.
I had to give up the solarium and bask in the sun
A. Cikanavičiūtė says that when she was white, the most difficult thing for her was to give up solariums and sunbathe and constantly use a sunscreen, because the girl was used to enjoying the sun and enjoying a chocolate tan:
“I am in a completely dark gym, unfortunately I have to stop sunbathing and solariums. I also always have to wear sunscreen.
On one trip we went to see the rice “windowsills”, the locals said it would be cold and we would need jackets. We arrive, we have time to prepare. I stood in front of the mirror, thinking that maybe the dust had been smeared. I also use it with an SPF filter.
But I thought no one would see me there, I don’t have to … After sunrise the temperature was +30 and the sun was hot. The chest is so burned that after 3 years it is still red. “
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