Lou Kin, co-founder of the Viral Ice Bucket Video Challenge, has died at the age of Lou after a seven-year battle with amitotrophic lateral sclerosis (ALS), often referred to as Le Gehrig disease. The ALS Association announced Quinn’s death Sunday morning.
“It’s very sad that we should share Patrick’s share early this morning,” the ALS Association posted online. “He was a blessing to all of us in many ways. We will always remember him for his inspiration and courage in his tireless fight against ALS.”
Quinn was first diagnosed with neurodegenerative disease in March 2013 at the age of 30. Inspired by his friend and behind the Ice Bucket Challenge, Late Pete Fritz, Quinn established a team of supporters to raise funds in the fight against ALS. Quinn came across Ice Doll Challenge On social media where people have to pour a bucket of ice over their heads, contribute to it and encourage others to do the same. Quinn knew that was the key to raising awareness about ALS.
The Ice Bucket Challenge, which took social media by storm in the summer of 2014, made Quinn a viral sensation. Since its inception, it has been challenged to raise more than 11 115 million for the ALS Association and 2 220 million for ALS research.
Following the Ice Bucket Challenge, Quinn spoke with groups across the country to raise awareness about the impact of ALS on individual voice and the importance of voice banking through project revisions. He continues to host the Ice Bucket Challenge every year in his hometown of New Yorkers and created a social media campaign that inspires people to “FinderSmile”. Quinn was also named Time Magazine’s “Person of the Year” with Freights.
Quinn spoke to those gathered on the fifth anniversary of the Ice Ice Doll Challenge and encouraged people to continue to help fight the disease. “No one knew that the Ice Bucket Challenge would become a worldwide event, but we came together as one, as this takes to change a disease like ALS.”
ALS is a nervous system disorder that affects nerve cells in the brain and spinal cord, leading to a decrease in muscle control. There is no cure for a fatal disease.
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