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Source, fake images
The National Lottery Christmas special raffle and sold in the jackpot amount of three Turkey tickets is transferred to the Asset Fund reported that 75 million TL SMA showed a response to the Ministry of Health launched the campaign for use to children.
In the written statement signed by Health Minister Fahrettin Koca, referring to treatment methods applied abroad, “the evidence published on scientific platforms about the effectiveness of gene therapy is not yet sufficient. We will not allow our children to be used as guinea pigs under pressure from pharmaceutical companies. ” It was said.
The statement of the minister’s husband about the campaign was used ‘Turkey tries to show that the state is incapable’ expressing “the dirty campaign of our children SMA carried out in good faith should not be a tool of anyone”.
How did the campaign start?
Actor Fırat Tanis, citing the participation of musician Ilkay Akkaya, asked his followers to quote his participation with the note “Let 75 million SMA patients transferred to the wealth fund be used for children.”
Following names like artist Aylin Aslım, Yasemin Göksu, and HDP MP Ömer Faruk Gergerlioğlu, Istanbul Metropolitan Mayor Ekrem İmamoğlu, İzmir Tunç Soyer Metropolitan Mayor, DEVA Party Chairman Ali Babacan and Muharrem İnce also supported the campaign. .
Citing the publication of the mayor of the Istanbul Metropolitan Municipality, Ekrem İmamoğlu, from his Twitter account, Cem Yılmaz stated that he supported the campaign launched for SMA patients.
‘Come do this favor’
Yilmaz, in his post, “If we say something to this idea, it is said that you are doing politics. For 2-3 months, I have met hundreds of desperate people about this issue, I have helped some of them as much as I could. It’s not enough. There can’t be a good suggestion for the National Lottery, come and do this right. ” used expressions.
Health Minister Koca: dirty campaign
Health Minister Fahrettin Koca, in a statement about the campaign launched on social media, said: “The treatment of diseases is not carried out by showing false heroism on social media, but by following the path of science.” and reacted to the campaign.
Saying, “I want to clarify the dirty campaign carried out on our children with SMA,” Koca said, “we are against the use of our children as guinea pigs. We will not allow the game of global pharmaceutical companies.”
Koca’s statement is titled “No one should be a tool for the dirty campaign that runs through our SMA children.”
Explanation “Our country is capable of treating its citizens in all conditions. The main theme here is to defend global pharmaceutical companies by rendering our state incapable of going beyond the limits of morality. We will not be a tool for this campaign that is running a campaign and trying to make our state helpless. ” he continues.
Reactions to the husband’s statement
The statement shared by Minister Koca on Twitter also sparked a debate on social media.
Some users that the ministers support the husband 2 years ago in the premarital genetic test, but then recalled that they take a step in this regard, some of them bringing up the issue of the coronavirus that Turkey has given 50 million doses ordered the coronavirus vaccine drew attention to the end of the phase 3 trial coronavac.
Supporting the campaign to transfer the National Lottery voucher to treatment, Cem Yılmaz also reacted to the statement of the Ministry of Health.
Some users are satisfied with the efficacy of Spinraz single drug treatment for the disease in Turkey, but highlighted the need for ease of treatment.
What is SMA disease?
In Turkey, Spinal Muscular Atrophy (SMA), a baby suffering from the disease or found too often in the recent campaign donation for a child.
The families of some children with SMA, a rare muscle disease, run over time, organizing donation drives so that their children can access the treatment they consider necessary.
A life-threatening disease caused by a disorder of the SMA gene.
Although it has been claimed in the medical world that SMA is an incurable disease, this common opinion has begun to change with the drugs developed in recent years.
There are three types of drugs that have been developed and approved so far for the treatment of SMA.
Only one of these drugs in Turkey, Spinraz, is covered by SSI in reimbursement.
The donation drives we see on social media are run by families who want drug gene therapy called Zolgensma abroad for their children.
