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The statements of Minister Koca on the subject;
No one with good intentions should be a tool for the dirty campaign that runs through our SMA children.
As you know, campaigns are carried out in favor of our children with Spinal Muscular Atrophy (SMA), which is frequently placed on the agenda of our country.
We are responsible for the recovery of each of our patients, regardless of their illness. Especially if our patient is a child, this deserves all priorities at the highest level. The health and life of each of our children is our most sacred role. One of the issues we are most sensitive to as a nation is our children. The treatment of diseases is carried out following the path of science, not showing false heroism on social networks.
I would like to clarify the dirty campaign that was carried out on our children with SMA. All treatments that are up-to-date and proven effective are applied with the recommendation of our SMA Scientific Committee. We are clearly against the use of our children as guinea pigs. Except for scientific data, we will not allow the game of global pharmaceutical companies. We will not allow our families to be abused. Currently, there is no concrete data that shows that the method proposed under the name of gene therapy works scientifically. However, this situation is abused by the campaigns carried out by pharmaceutical companies. We will not allow our children to be used as guinea pigs under pressure from the pharmaceutical companies.
There is no collective reaction to a problem. However, as far as we can see, we are faced with an organization that serves the purpose of pharmaceutical companies. The figures mentioned when organizing the campaign ‘the suggested financial resources do not represent any additional value to the resources allocated for the treatment of our children so far. It is not a question of resources. Our country is capable of treating its citizens in all circumstances. The main problem here is going beyond the limits of morality and defending global pharmaceutical companies by rendering our state incapable. We will not be a tool in this campaign, which is campaigning together and trying to weaken our state.
Our state will continue to use all treatments that have been shown to work for free for our children.
SMA disease is a genetic disease. After that, precautions will be taken by conducting gene screening for all family candidates before marriage and our fight will continue until SMA disease is no longer seen in our country and our existing patients are treated.
