[ad_1]
Her husband, sharing his twitter, raised a lot in Turkey. Spinal Muscular Atrophy (SMA) patients said they campaign on children.
Minister Koca, “No one with good intentions should be a tool for the dirty campaign that is carried out through our children with SMA.” made his assessment.
Emphasizing that each patient is responsible for their health, regardless of their illness, Koca continued as follows:
“Especially if our patient is a child, this deserves all priorities at the highest level. The health and life of each of our children is our most sacred trust. One of the most sensitive issues in our nation is our children. The Disease treatment is carried out following the path of science, not displaying false heroism on social media. Our state treats our children with SMA using all means. Abuse of this problem is never acceptable. ”
Koca pointed out that the treatment of these children is planned within the Ministry, and that there is a scientific committee made up of expert scientists with experience in the treatment of SMA, and stated that the most up-to-date methods in the treatment of children are evaluated and implemented in the fastest way.
class = “cf”>
Koca emphasized that financial conditions are not on his agenda in this regard.
Stating that the SMA Scientific Committee informed families and family associations first-hand, Koca said: “There is not a single SMA patient in our country who does not receive treatment. All treatment costs are covered by our been free of charge. ” used the expression.
Minister Koca said that the data on gene therapy, which was developed recently and is on the agenda, was immediately and meticulously examined by the Scientific Committee of SMA, since in the first process, only in the last 2 months, the Committee Scientist collected 5 times and reviewed data on the drug, and this week, an evaluation meeting. reported that it will.
“WE WILL NOT ALLOW OUR FAMILIES TO BE ABUSED”
Underlining that the evidence published in scientific platforms on the effectiveness of gene therapy is not yet at a sufficient level and there is no evidence that it is superior to currently applied therapy, Koca noted that some studies have reported serious side effects, especially liver failure. and low platelet count (tendency to bleed).
The husband, as part of the procedure for applying gene therapy, must suppress the immune system for at least a month, especially in some patients with greater weight, this process can extend up to 1 year, in patients with fragile SMA, infections and the suppression of the immune system pose a greater risk, any Emphasized that the process during the course of the disease can be fatal regardless of the disease.
Minister Koca noted the following:
class = “cf”>
“I want to clarify the dirty campaign carried out in our children with SMA. All the treatments that are current and that have proven their effectiveness are applied with the recommendation of our Scientific Committee of SMA. We are clearly against the use of our children as guinea pigs of indias. Except for scientific data, we will not allow the game of global pharmaceutical companies. At the moment, there is no concrete data that shows that the method proposed under the name of gene therapy works scientifically. However, this situation is abused by the campaigns We will not allow our children to be used as guinea pigs under pressure from the pharmaceutical companies.
“IT’S NOT A QUESTION OF SOURCE”
class = “cf”>
Fahrettin Koca assessed that there is no collective reaction on an issue, but rather an organization that serves pharmaceutical companies.
Noting that the figures mentioned when organizing the campaign and the proposed financial resources do not represent any value other than the resource allocated to the treatment of children, Koca made the following evaluations:
“The issue is not a question of resources. Our country is capable of treating its citizens in all conditions. The main issue here is defending global pharmaceutical companies by pushing the limits of morality and showing that our state is incapable. No we will be a tool in this campaign that is trying to incapacitate our state.
Our state will continue to use all treatments that have been shown to work for free for our children. SMA disease is a genetic disease. From now on, action will be taken by conducting gene screening for all family candidates before marriage and our fight will continue until SMA disease is no longer seen in our country and our existing patients are treated. ” .
