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Minister Koca, in his statement on his Twitter account, stated that members of the Scientific Committee of the SMA, ministry officials and associations of SMA attended the ‘Workshop on Current Treatments in SMA Disease organized by the Ministry of Health.
“THE CLAIMS THAT WILL DIE WITHOUT TREATMENT WITHOUT FUSION”
Husband, “The SMA Scientific Committee discussed current scientific studies on SMA drugs and possible gene therapy that have recently come to light. The SMA Scientific Committee stated that claims that the disease has no cure and that he will die if he does not receive gene therapy until he is 2 years old is unfounded.
“THE PROCESS CAN BE EXTENDED UP TO 1 YEAR IN HIGH WEIGHT PATIENTS”
SMA patients whose application process has been completed still benefit from the treatment, which is known to be effective and has side effects, and which is applied successfully in our country. As part of the procedure of applying gene therapy, it is necessary to suppress the immune system for at least 1 month, especially in some patients with high weight, this process can take up to 1 year. The SMA Scientific Committee meets monthly, NGOs and families are informed ” used expressions.
Members of the Scientific Committee of the SMA, officials of the Ministry and associations of SMA attended the Workshop on Current Treatments in SMA Disease organized by our Ministry. The Scientific Committee of the SMA discussed current scientific studies on SMA drugs and possible gene therapy that have been on the agenda recently.
– Dr. Fahrettin Koca (@Fahrettinkoca) November 28, 2020
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