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His wife’s condition, who developed a designated intractable disease at the age of 23, gradually worsened. At the age of 32, he became unable to walk alone, and at the age of 34, he became difficult to swallow. He needed to be immobilized for 24 hours to avoid injury caused by his own involuntary movements. The husband of the same age changed his wife’s diapers, ate and helped bathe alone. What is the reason for saying, “When my wife’s condition suddenly changed due to the crown disaster, I was strangely calm.”
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※ The photograph is an image
(Main content of the first part)
A man living in Kyushu who was dating and living together after meeting in a high school alumni association at the age of 22. After leaving, the other woman was diagnosed with Huntington’s disease, a progressive, inherited disease (called intractable disease) in which some nerve cells in the brain are lost. However, the man married with love, spoke and decided to become pregnant.
Although it is an intractable disease, there is no disability pension and the public expenditure for medical expenses could not be obtained.
(Continuation of the first part)
Yoshihiko Seto (a pseudonym, now 40 years old, single) who entered marriage knowing that the other woman had a designated intractable illness retired from the company she worked for at the age of 27 and is a small family run by a relative in his hometown of Kyushu. I decided to change my job to a company.
My wife had a disease called Huntington’s disease, but we both consulted well and decided to get pregnant. Since I became pregnant with a long-cherished desire, I decided to return to my hometown, where the homes of each other’s parents are, and help a family-run business, thinking of balancing caring for my wife and raising the child. child to be born. I thought, “It would be better to move into one of my parents ‘houses in the future,” so I decided to live in Seto’s parents’ house at the request of my wife.
As a result, my wife had a mischief, but Mr. Seto did not stop dedicating himself to his wife. However, the events that made me uncomfortable were attacking one after another.
Around this time, Mr. Seto began procedures such as a certificate of invalidity and a disability pension for his wife. However, there was no disability pension because the national pension had an unpaid period of several months. In Japan, Huntington’s disease was designated as an untreatable disease when the Untreatable Diseases Act came into effect in 2015, but as it had not yet been enforced at that time, public spending for medical expenses could not be obtained.
One day my wife fell down the stairs and passed out
In August 2010, Seto-san and Seto-san’s parents have work, so during the day, his wife alone will be away. One day when Mr. Seto came home to see what was going on, his wife fell down the stairs and passed out. I immediately called an ambulance and they inspected me, but luckily there were no more abnormalities than blows.
The Seto couple have lived on the second floor of their parents’ house since they returned home. Mr. Seto, who thought it was dangerous to go up and down the stairs, started the construction from “far away”.
“I told my architect’s friend that ‘what is going to happen’ in the future, and I asked him to design based on that.” I assimilated it. “
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