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A man living in Kyushu, who was dating and coexisting after meeting in a high school alumni association at the age of 22, has been caring for the other woman for many years. Immediately after leaving, the woman was diagnosed with a progressive, inherited disease (called intractable disease) in which some nerve cells in the brain were lost. No cure has been established. Still, the man married with love, spoke and decided to have a child, but a sad ending awaited him.
Photo = iStock.com/kohei_hara
※ The photograph is an image
In this series, we will present examples of “individual care.” “Individual care” refers to a case in which a single person, a person who has divorced or deceased their spouse, or a person who has brothers and sisters is in charge of care alone. The situation surrounding the party is tough. I have often heard people say, “I’m about to cross the line.” Why is such a crisis situation created? I would like to make a warning to society through my case studies.
My wife, who was a classmate in high school, developed the so-called intractable “Huntington’s disease.”
Yoshihiko Seto (a pseudonym, now 40 years old, single) who lives in Kyushu meets his wife at an alumni reunion that takes place once a year after graduating from high school. Even if we say “reunion,” the expression “reunion” may be more appropriate because we had barely spoken to each other while in high school.
At the alumni party, when I was 22, I sat nearby and talked about a radio show, so I decided to eat and drive together. A month later, they officially began dating, and a year later, they rented a house with the kindness of Mr. Seto’s elders and began living together.
A year after living together, I noticed that something was wrong with my wife. The habit of sucking poverty became more intense. It didn’t matter much to me at the time, but it turns out that habit is a sign of a later illness.
After a while, my wife’s father came to visit her home. The father is terrified when he sees his daughter for the first time in about a year. There was a sense of vision in the peculiar physical movements, the bad tongue, and the intense poverty that Mr. Seto thought was his wife’s habit.
The father urged his daughter to visit a large hospital.
“My parents divorced when she was young and her mother died more than 10 years ago, so she has little recollection of her mother. When she started dating, her father told her about it.” They told my mother that she died of the Minamata disease “.
The wife was hospitalized for examination and four days later her father accompanied her and returned with a medical certificate. When you look at the certificate, “Huntington’s disease”（※）The name of the disease with which he was not familiar was included.
* According to the “Intractable Diseases Information Center”, a rare disease of less than 5 to 6 in 1 million Japanese. As of the end of 2018, a certificate of medical beneficiary has been issued to 913 patients in Japan.
“When I first heard the name ‘Huntington’, I accidentally laughed at a mysterious sound that didn’t sound like a disease. However, after that, I heard the ‘truth’ from my father-in-law until my mother-in-law died and I was sick I had a slight dizziness due to the difference with the feeling of despair after meeting the fierceness of
Progressive neurodegenerative disease in which the nerve cells of the “basal nucleus of the brain” are lost
Huntington’s disease is a progressive neurodegenerative disease in which nerve cells in a certain part of the brain’s “basal nucleus” are lost. The basal nucleus of the cerebral brain controls various functions such as motor control, cognitive function, emotion, and motivation.
The main symptoms are divided into loss of ability to control movements (involuntary movement / difficulty swallowing), loss of thought / judgment / memory, and difficulty controlling emotions (depression / irritation, etc.). The more severe the disease, the milder the symptoms tend to be.
My wife’s mother died of Huntington’s disease at a young age, not from Minamata’s disease. The father explained that Huntington’s disease is a hereditary disease, and daughters are likely to follow the same path as their mothers and will probably be sleepy in the future.
Until late that day, I spoke with my wife. As he listened to what kind of exam he had in what kind of hospital and how he feels now, Mr. Seto felt like he was having a nightmare.
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