[ad_1]
They left him for dead, then they told his parents that he would remain in a vegetative state for his short life and instead now he walks with his legs, goes to school and interacts: the story of Sirius, 7 years old, born premature and with tetraparesis Spastic, considered doomed, but today an example of tenacity and hope, moves the whole of Italy and teaches each of us that the limits are really only in our heads, in the way we face challenges. Images of his first day of school, with his mother’s smartphone filming the effort to enter the classroom, circulated around the web.
Chi
Sirius was born in Rome on August 15, 2013, severely premature, weighing just two kilos when he first saw the light. After a period of intensive care, the Bambin Ges in Rome decides to discharge one month before the presumed date of birth: a choice that ex post made the family think a lot, making them also evaluate the possibility of taking legal action. The fact is that Sirius returns home to Mom and Dad and for eight days he lives a regular diet and relatively quiet sleep. But one morning something goes wrong. Sirio in his crib when mother Valentina realizes that she is no longer moving, not breathing. You try to shake it, wake it up, but the little one doesn’t move helplessly. I didn’t know what to do, I yelled at my husband: dead, dead, Valentina said on the bill. twitter @tetrabondi that each video collects thousands of views.
Mom: don’t be ashamed
From a vegetative state we went on to an always serious diagnosis, but with some hope: Spastic tetraparesis due to hypoxic ischemic damage. However, it means that Sirius will not be able to walk. That’s what the doctors say. And instead sometimes even a phrase. The news that Sirius is now seven years old and walks, certainly with some difficulty, but he walks. And then grab pens and pencils, write and draw. And behind this true miracle there is an enormous job, rehabilitation in the hospital and at home, the nurses who take care of him, the parents who love him madly, the older brother who is an essential reference. Valentina writes on social media: My quadriplegic son, but I don’t want to hide his illness. On the contrary, I want to spread a message of hope because Sirius is a positive story despite its drama -explains the mother-. There are many families that experience cases of serious disability in solitude, in abandonment, shutting themselves up in their own pain and in their own home. And instead, we should never be ashamed of how people look, we should know how to deal with them.
Example of hope for all
Valentina, on social media, presents the story from her son’s point of view. For example, in the Twitter post in which he talks about his return to school with the video, Sirio through his mother says: When I entered the school completely I only had a phrase that I heard seven years ago echoing in my head: “The child will never be able to make voluntary movements or become aware of himself.” There are dozens of responses to each post like this, writes Anna: I woke up depressed and sad, I saw you walk straight and fast and I gave myself as a silly. Sirius, you are a powerful antidepressant, you should be paid. Fabio comments: What moves me is the will to rediscover some normality and sociability outside the family environment. These children absolutely need support teachers, but also the opportunity to be in contact with others. Everyone earns it. Cristian adds: There are no words to describe the admiration I have for this little lion. A giant. There are people who feel sorry for themselves when faced with problems. emas, others try to solve them. Well, it destroys them. Thank you for the valuable life lesson.
Difficult moments
Of course, there are also critical moments. Valentina, who also created the Facebook profile Sirio ei tetrabondi: tetraparesi on the move, says: Going out with Sirio is exhausting: they even rob your personal parking lot and we have to take a lot of things with us, but the alternative of staying closed all day at home. much worse. Demonstrating that it can be done serves to move other parents, so that they also see that you cannot nullify yourself in your disabled child. Living also means being happy or at least trying to be happy. I feel the duty to do it above all for Nile, but also for myself.
The fight for public assistance
Valentina, despite her commitment, a woman who works: I am a postal worker. Before the arrival of Sirius, I was also much more: I was a blogger, I collaborated with a radio station, I was precarious. My partner, on the other hand, now does not work, he was a contributor to a newspaper that closed and now deals 24 hours a day with Sirio: the only real family check had to be saved. I managed to get telecommuting and thus safeguard a full-time job without leaving home. In the application I attached a letter to human resources where I told them about the typical day next to Sirius: the conclusion could only be that either I lost my job or they allowed me to work from home.
A bigger battle
Their battle is also to make the world understand that without public help, similar battles cannot be faced: there are nurses that we have managed to obtain in home care, for 10 hours a day. It was a tough battle with ASL, but we won it. When we were discharged, the hospital asked the ASL for 12 hours of assistance – they actually wanted to write 24, but we have a small house, we don’t have space for an extra room for a nurse and then we didn’t want it to become a hospital . Too bad the ASL offices told me that they would give us a maximum of half an hour. We stayed in the hospital for another month and struggled to get what we had. And we have been fortunate that in these 4 years the nurses assigned to us have not changed: they have become daughters, sisters, aunts. Always the same since May 2014: an addition to our family. A few days ago we were allowed to go to the cinema after 6 years: a girl took a 16-hour shift. Next year Sirius will start primary school: another stage of the battle for Sirius, which is everyone’s battle.
September 18, 2020 (change September 18, 2020 | 11:46)
© REPRODUCTION RESERVED
[ad_2]
