“Thanks for your unconditional support”: Borja receives the first dose of the most expensive medicine in the world | National

“Borja today was infused with Zolgensma, it is something indescribable, our hearts are incredibly happy“, Commented with great joy the parents of the little penquista who suffers from Spinal Muscular Atrophy (SMA) type 1.

It was in September of this year that Mariajosé and Rodrigo, Borja’s mother and father, received the news that their son would receive the donation of the most expensive medicine in the world, Z according to ma. This after applying to a world lottery that draws it between candidates from different countries.

Today, after almost three months, Borja received the first dose of the expensive drug (US $ 2.1 million), which was reported with great emotion by his parents on social networks.

Thank you for your unconditional support, for making this dream possible, of changing Borja’s life, ”said his mother, who explained that the first weeks are very important, so the child will be under observation.

“This invasion of their body must be regularized little by little, with periodic examinations,” they pointed out in the Instagram publication, where they also stated that Borjita He will take up the therapies little by little with his team of kinesiologists, speech therapists and occupational therapists.

The couple ended their message by noting that “the love conquers all” and they defined the situation as a movie and a miracle. “We did it!”they stated.